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Some useful links
Suggested Web Sites to visit for more information on children's cancer
Sites That Address Topics Specific for Kids |
| 4 Kids http://www.cancersourcekids.com Dealing with cancer is tough. That's why we created CancerSourceKids, a place where you can learn about cancer and have fun with games and art. |
| A list of cancer
books for kids. http://mel.lib.mi.us/health/cancerbooks/ A list of books and online resources compiled by the State Library of Michigan. Blood Counts for Kids http://coninfo.nursing.uiowa.edu/sites/pedspain/bcounts/index.htm A site to help with the understanding of Blood Counts, an important way of learning about cancer and the way it will be treated. Captain Chemo http://www.royalmarsden.org.uk/captchemo/index.asp A comic strip created by a young patient at the Royal Marsden has been turned into an interactive computer game to help cancer patients worldwide. Camp Quality http://www.campquality.org.au/ Camp Quality will hold approximately 100 recreational camps this year throughout Australia for children living with cancer. The majority of these camps are based on recreational experience like horse riding and abseiling in the summer and skiing in the winter months. The camps last from two to seven days. Each camp is fully funded by the organisation, including the cost of the carers (companions). Cancer in Children: Resource Center (access thru site index) http://www3.cancer.org/cancerinfo/res_home.asp?ct=7 As the USA’s largest private, not-for-profit source of funds for scientists studying cancer, the American Cancer Society (ACS) focuses its funding on investigator-initiated, peer-reviewed proposals. Candlelights Childhood Cancer Foundation http://www.candlelighters.org/ Candlelighters Childhood Cancer Foundation® (CCCF) is an American non-profit membership organization whose mission is to educate, support, serve, and advocate for families of children with cancer, survivors of childhood cancer, and the professionals who care for them. Canteen http://www.canteen.com.au/ The touchstone of CanTeen is the belief that young people, through meeting and talking with one another, are better able to cope with the uncertainties of a cancer diagnosis. Children’s Hospice International http://www.chionline.org/default.htm An American site that’s has demonstration model programs that will offer an opportunity to overcome existing roadblocks to the provision of appropriate care for children and their families, and will allow the provision of a continuum of care -- from the time of diagnosis through bereavement. Chronic Illness, Children, Health Education http://funrsc.fairfield.edu/~jfleitas/contents.html This is a site about growing up with medical problems ...any ole type. Its goal is to help people understand what it's like, from the perspective of the children and teens who are doing just that. Make A Wish Foundation http://www.makeawish.org.au The Make-A-Wish Foundation steps in to assist children and their families by providing an avenue for hope and strength. By focussing on the positive, the Make-A-Wish Foundation brings magic and joy to over 300 of children each year, by granting their most cherished wish. This is an experience that the children, their parents and siblings look forward to, often holding on to it to get through the tougher times. Sydney Chilren’s Hospital http://sch.sesahs.nsw.gov.au/sch-intranet/ Aligned with the NSW Health Department and the SESAHS we have formally adopted similar strategic domains. In addition to this, we have adopted a further strategic domain, ‘Shaping the future’, demonstrating our commitment to better health outcomes for children and young people with a strong focus on teaching and research. The Never-ending Squirrel Tale http://www.squirreltales.com/index.html Every bit that you add improves the life of another family as they come on-line and discover that they are not alone - that others have walked the same road before them and that more and more children are surviving the battle with Cancer. Oncolink Kids Corner (resources for children and families) http://oncolink.upenn.edu/ This is your chance to "Ask the Experts" everything you've always wanted to know about special issues affecting young adult cancer survivors including potential long-term effects of treatment such as fertility and workplace issues as well as information concerning overall health, well-being, and quality of life. Starlight http://www.starlight.org.au./ A non-profit organization dedicated to brightening the lives of seriously ill and hospitalised children & their families. By granting wishes, providing Starlight Express Rooms, complete with their own Captain Starlight, Starlight Fun Centres for the latest in bedside entertainment and our newest program Starlight Express Outreach - a mobile Starlight Express Room which visits regional and metropolitan hospitals. |
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| The BEA News Section Provides an epilepsy news archive as well as news updates |
Australian Cord Blood Bank
http://www.sch.edu.au/departments/acbb/default.asp
The Australian Cord Blood Bank (ACBB) was
established at the Sydney Children's Hospital in 1995 and forms part of
a national network of cord blood banks in Melbourne, Sydney and
Brisbane. It collects and banks cord blood from voluntary donors,
anonymously, for use by any patients, Australian or overseas, needing a
stem cell transplant.
Palliative Care Australia
http://www.pallcare.org.au/
Palliative care is about caring
for people with a terminal illness as well as their families and
friends. Palliative care is care which 'palliates', or relieves pain and
other symptoms. It is given when treatment to cure an illness won’t
work any longer. It aims to ease the pain, distress and many other
physical, emotional and spiritual problems that are present with a
terminal illness.
Sydney Children’s Hospital
http://sch.sesahs.nsw.gov.au/sch-intranet/
Aligned with the NSW Health Department and the SESAHS we have formally
adopted similar strategic domains. In addition to this, we have adopted
a further strategic domain, ‘Shaping the future’, demonstrating our
commitment to better health outcomes for children and young people with
a strong focus on teaching and research.
National Bone Marrow Transplant
Link (USA)
http://comnet.org/nbmtlink
This nonprofit organization seeks to help patients and families of those
considering bone marrow transplants. Its Web site includes online guides
about bone marrow transplants and about stem cell transplants for breast
cancer, FAQs of interest to transplant recipients and their families,
and information about donating marrow.
Coping
with Cancer/Support Information
Cancer Index
http://www.cancerindex.org/
The Guide to Internet Resources for Cancer family of Web sites,
established 1996, now with over a thousand pages. It is maintained on a
voluntary / not-for-profit basis.
Cancer Answers
http://www.canceranswers.com.au/links/
The "Cancer Answers" web page will provide an up to date list
of cancer service providers. The search engine then aids your selection
by sorting through the database using a combination of criteria such as
type of specialist, type of cancer and geographic location. This then
allows you to make an informed decision about treatment services.
Compassionate Friends
http://www.compassionatefriends.org/index.html
The mission of The Compassionate Friends is to assist families toward
the positive resolution of grief following the death of a child of any
age and to provide information to help others be supportive.The
Compassionate Friends is a national nonprofit, self-help support
organization that offers friendship and understanding to bereaved
parents, grandparents and siblings.
Cancer Support Association
http://www.cancersupportwa.org.au/
This is a patient run support group that offers 24 hour support as well
as meetings etc.
Cancer Resource Directory
http://www.bereavementcare.com.au/vif/vi-links.htm
This site contains an extensive resource directory about cancer. From
specific information about particular types of cancer to psychosocial
support and personal experiences, the global resources include
institutions, organizations, associations, support groups, online
journals, book reviews, and other resources for cancer patients and
physicians.
National and International Cancer Organisations
http://www.cancerindex.org/clinks7.htm
The list below contains links to National and International
organisations that are involved in cancer treatment, research, support
etc. However, please note that this is not an exhaustive list of such
organisations; there are a great many other dedicated cancer
organisations which do not as yet have Web sites. Some organisations
that are not exclusively cancer oriented but are involved with a
specific type of cancer or medical speciality may not be included in
this list but are available via the Disease and Medical
Speciality menus.
International Hospice, Institute
& College
http://www.hospicecare.com
Website with few images and pictures in order to make the information
easy to download, especially for those who do not have access to high
speed internet. In addition, the "Last Update" shows the day
that new information was added to the page without the need of clicking
in the specific link, which saves time and resources. The Traveling
Fellowship Mini Site is however full of pictures and images. If your
connecting capacity is below 56K or more, it may take a long time to
download the information.
SANDS
http://www.sandsvic.org.au/
A support group for parents who experience miscarriage, stillbirth or
newborn death.
CancerNet
http://www.cancernet.nci.nih.gov/peb/eating_hints/index.html
A great site with eating hints for cancer
patients. Your diet is an important part of your treatment for
cancer. Eating the right kinds of foods before, during, and after your
treatment can help you feel better and stay stronger.
Gynaecological Cancer Society
http://www.gcsau.org/
This site has been developed as part of our Information and Education
Programme and provides information that caters to the needs of patients,
carers, family, professional & students.
Growthhouse
http://www.growthhouse.org
Growth House, Inc., provides this award-winning portal as your
international gateway to resources for life-threatening illness and end
of life care. Our primary mission is to improve the quality of
compassionate care for people who are dying through public education and
global professional collaboration. Our search engine gives you access to
the Internet's most comprehensive collection of reviewed resources for
end-of-life care.
Death education and Counselling
http://www.adec.org/
This is is one of the oldest interdisciplinary organizations in the
field of dying, death and bereavement. The almost 2000 members are made
up of a wide array of mental and medical health personnel, educators,
clergy, funeral directors, and volunteers. ADEC offers numerous
educational opportunities through its annual conference, courses and
workshops, its new certification program, and via its acclaimed
newsletter.
Children’s Hospice International
http://www.chionline.org/
Providing resources and referrals to children with life-threatening
conditions and their families Helping to establish children's hospice
programs worldwide Providing education and training for health care
providers to allow them to care even when they cannot cure Advocating on
behalf of these children and families.
Cancer
Literature
Children’s Cancer Institute Australia
http://www.ccia.org.au
Was founded in May 1976 by a dedicated group of parents and doctors who
wanted to do something more to fight childhood cancer. At that time,
there was no organisation in Australia carrying out research into
childhood cancer. Today, we remain the only research institute in the
country solely devoted to research into the causes, prevention and cure
of childhood cancer. Over the Institute's history, our vision has
remained unchanged: to save the lives of all children with cancer and
eliminate their suffering.
National Cancer Institute (Cancernet)
http://cancer.gov/cancerinfo/
The NCI, established under the National Cancer Act of 1937, is the
Federal Government's principal agency for cancer research and training.
The National Cancer Act of 1971 broadened the scope and responsibilities
of the NCI and created the National Cancer Program.
Australian Cancer Directory
http://www.ncl.ac.uk/~nchwww/guides/clinks61.htm
A detailed site with a comphensive and detailed directory of australian
based cancer organisations and information stored by area ,cancer types
and other topics.
Electronic Journal of Oncology
http://www.elecjoncol.org
Is an exclusively electronic peer-reviewed journal containing original
publications in the fields of oncology and neoplastic hematology. The
scope of the Journal encompasses basic research, translational research
as well as clinical trials and observations.
MEDLINEplus: Cancers Topics
http://www.nlm.nih.gov/medlineplus/cancers.html
A goldmine of good health information from the world's largest medical
library, the National Library of Medicine. Health professionals and
consumers alike can depend on it for information that is authoritative
and up to date.
Cancer
Statistics
World Health Organisation
– Cancer Pain & Palliative care program
http://www.whocancerpain.wisc.edu/
Cancer Pain Release is the publication of the World Health
Organization global communications program to improve cancer pain
control and palliative and supportive care.
Cancer Pain Release is dedicated
to keeping a worldwide and multidisciplinary audience in the health
professions and government abreast of relevant information and
developments in clinical medicine, education and policy.
Data base of Cancer Research in Australia
http://cornhill.ludwig.edu.au/cara2/index2.html
Includes information on institutions, researchers, tumour types, and
funding bodies. There is a navigable map of researchers by region.
Patients
Home Pages
Shiloh's Story
http://members.ozemail.com.au/~middy/shiloh.html
The story of Shilo's progress following the diagnosis of Acute Myeloid
Leukaemia on the 3rd April 2002.
Hepatoblastoma, A Parents Diary
http://
www.jkmt.com.au/hepatoblastoma
Lachlan's mum and dad share their experiences for other parents of
children with hepatoblastoma.
Research
Resources
Chronic Illness,
Children, Health Education
http://funrsc.fairfield.edu/~jfleitas/contents.html
This is a site about growing up with medical problems ...any ole type.
Its goal is to help people understand what it's like, from the
perspective of the children and teens who are doing just that. These
kids have become experts at coping with problems that most of you have
never heard of.
Clinical Trials Centre
- National Health and Medical Research Council
http://www.ctc.usyd.edu.au/
The CTC runs large multicentre clinical trials, takes part in trials of
national and international collaborative Trial groups and contributes
expertise to trials run by others.It also undertakes research into trial
methods and reviews evidence from completed trials. For groups wanting
to run their own trials, the CTC will advise on trial design or
operation, randomise patients or analyse data.
The Children's Oncology Group
http://www.childrensoncologygroup.org
The Children's Oncology Group is a National Cancer Institute-supported
clinical trials cooperative group devoted exclusively to childhood and
adolescent cancer research. COG develops and coordinates cancer clinical
trials conducted at the 238 member which include cancer centers of all
major universities and teaching hospitals throughout the U.S. and
Canada, as well as sites in Europe and Australia. COG members include
over 5000 cancer researchers dedicated to saving the lives of children
with cancer.
Trans Tasman Radiation Oncology Group
http://www.newcastle.edu.au/centre/trog/
A clinical research group concentrating on research into radiation
oncology in Australia and New Zealand.
TROG is a co-operative cancer trials
group involving Radiation Oncologists throughout Australia and New
Zealand. Provided on this site is a range of cancer trial information.
Data base of Cancer Research in Australia
http://cornhill.ludwig.edu.au/cara2/index2.html
Includes information on institutions, researchers, tumour types, and
funding bodies. There is a navigable map of researchers by region.
Royal Australian and New Zealand College of Radiologists
http://www.ranzcr.edu.au/
Professional body representing Radiation Oncologists in Australia and
New Zealand. This website aims to promote, encourage, and provide for
the advancement of the study of the sciences known as Diagnostic
Radiology, Diagnostic Medical Imaging, and Radiation Oncology.
Royal Australasian College of Physicians
http://www.racp.edu.au
Professional body representing Medical Oncologists in Australia and New
Zealand. For those visitors to the site who are not College members, the
site provide’s information about what the College does and its
members, the role of physicians and paediatricians and links to a range
of related health information material we hope will be of interest.
Royal Australasian College of Surgeons
http://www.racs.edu.au/
Considerable effort and resources are expended by the College in
continuing education through a wide range of activities including
Updates and Special Surgical Courses at State/New Zealand Committees,
Scientific Meetings, Regional Meetings, Specialist Society Meetings,
Workshops, Seminars and Conferences, and the principal Annual Scientific
Congress involving all disciplines of surgery.
Other
Resources
Cancer Source
http://cit.cancersource.com/
Offers current information on complementary therapies with a non-biased,
evidence-based approach. We provide evidence regarding the effectiveness
and safety of many therapies that may be integrated with traditional
cancer treatments.
Cancer Index
http://www.cancerindex.org/
The Guide to Internet Resources for Cancer family of Web sites,
established 1996, now with over a thousand pages. It is maintained on a
voluntary / not-for-profit basis.
Medical Terminology
http://www.cancerindex.org/medterm/
This guide is based on information from a wide variety of sources
collected over the last 9 years during which the author has worked in
cancer research.
Cancer Glossary
http://www.cancerindex.org/glossary.htm
203 definitions in the database This file generated from glossary Simon
Cotterill, became involved in cancer research in 1989 with roles in
statistics and computing, my qualifications are non-medical. This
glossary has been developed largely in my personal time.
Children’s Cancer Web
http://www.cancerindex.org/ccw/
Welcome to Children's Cancer web; an independent non-profit site,
established in 1996 to provide a directory of childhood cancer
resources.
Guide to Internet Resources for
Cancer
http://www.lib.uiowa.edu/hardin/md/
Guide to Internet Resources for Cancer - gateway to cancer information
on the Net since 1996. This non-profit guide contains over 100 pages and
more than 4,000 links to cancer related information. It is regularly
updated and links are periodically verified using a link-checker.
Bablefish Translater
http://babelfish.altavista.com/
It's simple enough for everyone to use - no linguistic experience
needed! Within seconds, you can mark words that should not be
translated, such as product names, and even add new expressions that
override the default translation.
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